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Lipoedema

"The Disease They Call FAT"

Welcome to the Lipoedema information page.

My name is Gayle Clearwater, I was diagnosed with lipoedema in 2020.  It has been a rollercoaster of discoveries, emotions, and plenty of fat shaming!   I created this page so women like me can have an information hub to educate, empower, and inform themselves on where to seek support, help, diagnoses, and what helps to improve their quality of life.   

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**Disclaimer** The information and resources provided on this page are based on my personal research, experiences, and recommendations from various websites and sources. I am not a medical professional, and the content shared here should not be considered medical advice or a substitute for professional diagnosis, treatment, or guidance. While I strive to present accurate and unbiased information, some of the places or resources I recommend may reflect my own personal experiences and opinions. It is essential to consult with a qualified medical professional or healthcare provider for advice tailored to your specific condition and needs, particularly regarding lipoedema or any related medical concerns. By using this page, you acknowledge and agree to the following: - The information provided is for informational and educational purposes only and is not intended to diagnose, treat, cure, or prevent any disease. - Any reliance you place on the information provided is strictly at your own risk. I am not liable for any errors, omissions, or outcomes resulting from the use of this information. - Links to third-party websites are provided for convenience only, and I do not endorse or take responsibility for the content, accuracy, or practices of these external sites. Always verify information independently and consult professionals as needed. - Personal experiences and opinions shared on this site are subjective and may not apply universally. Results may vary depending on individual circumstances. I strongly encourage you to seek advice from licensed professionals for medical, legal, financial, or other specialized concerns. Your health and well-being are your responsibility, and any decisions made based on information from this page are at your sole discretion. This disclaimer is subject to change without notice and should be reviewed periodically for updates.

Website Directory

If you have more resources and websites, you think people would benefit. 

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Flick me a message.  lipoedema2020@gmail.com

Lipoedema fat structure

"Treatment summary — Fat disorders resource society," 2016)(Dr Ciric, n.d.)

Links to websites with great information & resources:

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Lipoedema Surgical Solution  -  https://lipoedemasurgicalsolution.com/

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The Lipedema Project https://lipedemaproject.org/about-lipedema/

 

DermNet https://dermnetnz.org/topics/lipoedema-definition-and-pathogenesis

 

Healthify https://www.healthnavigator.org.nz/health-a-z/l/lipoedema/

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Lymphoedema NZ - http://www.lymphoedemanz.org.nz/

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Lipedema Foundation - https://www.lipedema.org/

 

Lipoedema Australia - https://www.lipoedemaaustralia.com.au/

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Lipedema.nethttps://www.lipedema.net/lipedema-definitions.html

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Downloaded medical researched articles:

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Women with lipoedema: a national survey on their health, health-related quality of life, and sense of coherence -

 https://bmcwomenshealth.biomedcentral.com/articles/10.1186/s12905-022-02022-3

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 Lipedema: A call to action!

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6790573/

 

Women’s experience of living with Lipedema article pdf uploaded

https://www.tandfonline.com/doi/full/10.1080/07399332.2021.1932894

 

Lipoedema management: Gaps in our knowledge

https://www.lymphinfo.org.nz/images/lipoedema_management_gaps-in-knowledge.pdf

 

Selenium Deficiency in Lymphedema and Lipedema—A Retrospective Cross-Sectional Study from a Specialized Clinic uploaded  nutrients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7281982/pdf/nutrients-12-01211.pdf

 

Lipedema Foundation link for research -

https://www.lipedema.org/research-and-researchers

 

Lipedema Foundation Library (so many resources referenced in one site) -

https://library.lipedema.org/bibliography/?sort=date_desc&topic=Lipedema

 

Lipedema-symptoms-treatment-causes

https://www.webmd.com/women/guide/lipedema-symptoms-treatment-causes

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Video links (stories & information)

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Lipoedema saved YouTube files (my playlist of resources) 

https://youtube.com/playlist?list=PLD7RgGdDFvfG1hj-TBvDB-8dG4WWNRbRi&si=CjWOBOWshZmWwcTz

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What is Lipedema and How is Lipedema Treated? | Total Lipedema Care | Dr. Jaime Schwartz

https://www.youtube.com/watch?v=MV8BbBulycw

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Health Matters Webinar - Lipoedema

https://www.youtube.com/watch?v=w5Fd8nDrxbw

 

The Faces of Lipedema - 

https://www.youtube.com/watch?v=yCISYHzESVE

 

Media Coverage

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One Woman’s Battle With Under-Diagnosed Autoimmune Disorder Lipedema

https://spectrumnews1.com/ca/la-west/health/2020/09/01/one-woman-s-battle-with-under-diagnosed-autoimmune-disorder-lipedema

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Mr Karri Appears on BBC Lipoedema Documentary

https://www.youtube.com/watch?v=KpgseCcA9hg

 

Embracing My Giant Legs Has Changed My Life For The Better | My Body My Rules

https://www.youtube.com/watch?v=3gJmoja-z2k  doco Embracing My Giant Legs Has Changed My Life For The Better | My Body My Rules

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‘I'm A Size 36 But It’s Not My Fault’ | This Morning

https://www.youtube.com/watch?v=qZZySaRTOeg&list=PLD7RgGdDFvfG1hj-TBvDB-8dG4WWNRbRi&index=13

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